Limpy - I Just can't get over the similarities!!

Crazy, that you mention the sunburnt feeling - I have that exact feeling - on my palms of my hands and forearms.. a little bit on one thigh as well.. The sun or heat greatly exacerbates it... I kept telling my neuro (who honestly I am not very impressed with, but they did start IVIG on me, so I feel a little obligated to stay there, as I worry another neuro could take it away - as I dont have a firm diagnosis). I kept telling my neuro that I felt like I needed to crawl out of my own skin.. but honestly I think it was more the vibrating muscle/weakness sensation than the small fiber neuropathy, that is why they tested me..

I also notice that the more I use my hands the more that numb/sunburn sensation occurs.. very strange.

All my muscles vibrate when I am weak.. including my face.. My lips will just vibrate.. Like when I was a kid and hummed against a ballon.. it's so odd feeling..

I just don't know how they diagnose people when they are seronegative (repeititve stim I suppose, but then you have to stop IVIG to get an accurate test.. and by 2 weeks post ivig I get more like a limp noodle, can't swallow etc... so I don't think I can do that)

you have given me so much hope! Thank you!!!!