Quote:
Originally Posted by bny806
again, HUGE relief hearing your symptoms, especially since you are a confirmed LEMs case..
At times (not always), I will angle my foot inwards and it will stick that way for a few seconds.. it doesnt' hurt, it's not cramping.. but it's just not relaxing..
As far as looking in the mirror.. I agree! I see pictures of myself and I can hardly recognize myself!! The weeks before I was admitted into the hospital last year (when they started my IVIG).. There was a picture and video of me with my kids.... I saw it recently and couldn't get over my face.. it was as it had melted off my bones.. I was only 30 at the time.. not supposed to look like that just yet!
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Exactly, the muscle stiffness is just that they are frozen in place. Not like a true spasm with a lot of pain. Well , except for when trying to swallow against it and it feels like you are trying to swallow a basketball. And when my buns were stiff, I think the pain from that is because I couldn't move to shift my weight so they became painful.
I can change my appearance throughout the day depending on how weak I am at any given time.