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Old 05-06-2007, 12:06 PM
jena1225 jena1225 is offline
Junior Member
 
Join Date: May 2007
Location: Florida
Posts: 64
15 yr Member
jena1225 jena1225 is offline
Junior Member
 
Join Date: May 2007
Location: Florida
Posts: 64
15 yr Member
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Hey Judy! Sorry you are having problems!

I must say that you have every reason to be doubting your Neuro! First, it is highly unusual, and in my opinion, irresponsible, for him to move forward the way he did without seeing you for a year! Don't get me wrong, I am glad he did b/c you are getting treated

Second, if he did not think it would help, why in the world would he rx it?!

Of course, this is just my opinion and not everyone feels the same way, but I think your best bet is to find an MS Specialist. I just found one after 14 years of being dx'ed, and it was the best thing I ever did

I mean, what is better than someone who's #1 priority is us and OUR illness?

Oh, was it you I told that I was also allergic to Solumedrol, that I had the anaphalactic reaction, and asked you about Decadron?? I never heard of it until you, as I was put on ACTH. I have to research the differences in the 2. How do you like the Decadron, as opposed to the IVSM? I mean, besides the reaction part! B/c didn't you get the treatment a few times before you became allergic?? I just know that the ACTH made me gain like 20 lbs in ONE week!

Sorry I rambled! I hope your treatment treats you right!
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