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Old 02-13-2013, 08:06 AM
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
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Quote:
Originally Posted by Lemonlime View Post
Soccertese - I am so sorry you feel that way! I would never try to lecture you or anyone. I truly apologize if I came cross that way! I really appreciated the help you offered me and took it to heart. I definitely do not feel as if I am an expert! I only posted those papers because they were from my research and posted it for anyone to read that may be interested. I apologize again if you felt it was directed to you. I can see how you would have taken it that way. I already had those links from previous research and just threw them in where applicable. I should have posted my thank you to you and then posted my links. I'm sorry if I came across overly excited!

Thank you for the information that dyskinesia is not always from Sinemet, but can be from PD. I did not know that! I thought it was a side effect of the meds and was merely pointing out that it was a fear. I too, am happy that we have Sinemet and see how it has helped so many people. I am not discounting Sinemet and know that it is in our near future. I am happy that we have that option. It's just that its new territory and we're scared! Thank you for easing the fear!

We were not given the option of whether to take Requip. The Neurologist basically said, take this, titrate up the dosage and I'll see you in 6 months. My point was that some doctors don't think about the patient or the long term and prescribe away. Yes, we always have a choice, but on diagnosis day, we were like putty in the hand. He didn't really need to take any meds, at the time, except maybe anxiety medicine. I wasn't discounting the med or anyone taking it. Sorry if it came across that way.

Please don't think I was trying to be anything but a newbie posting info that I thought was exciting research. I am truly sorry and will refrain from posting such info.
I appreciate your insight and hope you will accept my apology!
just trying to put things in perspective. i'd get that book, i learned a lot and it provided a a platform for better evaluating what i find on the internet and read on message boards which can sometimes be misleading. you did all that internet searching and imho came away with an incomplete understanding of dyskinesias which spending $10 on a general book about pd would have clearly explained.
as far as your statements about sinemet sometimes causing dyskinesias, be aware that if you give sinemet to someone without pd, they don't get dyskinesias. my point is get what works the best for your husband and not worry so much about dyskinesias. from your description of your husband's experience with requip, sounds like sinemet might be his only choice. if he gets them, then you deal with it. from my understanding , sinemet doesn't change the brain and ultimately cause dyskinesias, it temporarily causes them and when it wears off it stops. I assume when michael j fox wakes up in the morning he doesn't have dyskinesias until he takes his sinemet. so taking sinemet doesn't prevent a future drug from working better without causing dyskinesias.

i'd spend more time researching what's going on in research, here's a podcast posted today on the MJFF
https://www.michaeljfox.org/files/mp3/mjf_todd_mark.mp3

Last edited by soccertese; 02-13-2013 at 08:31 AM.
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