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Old 02-13-2013, 06:53 PM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Hi, and welcome. I don't know how you were doing all of that even before you got sick. I'm exhausted just imagining it.

If your AChR antibodies came back negative, they should also test your blood for MuSK and LEMS antibodies. Also, I hope you're getting a CT-scan of your thymus gland to make sure you don't have a thymoma.

If you have any trouble getting a diagnosis (because your blood tests negative), the next test would be a single-fiber EMG (SFEMG). A lot of us here who are seronegative (negative blood) were diagnosed on the basis of this test. Not every neurologist can do this test--you have to find one who specializes in neuromuscular diseases.

Your symptoms sure do sound consistent with MG. I hope someone has explained to you that MG can tank really fast. If you suddenly get a lot weaker, or have new symptoms, or have any trouble breathing, or find you can't swallow, these are medical emergencies. Get to an ER or call 911. An MG crisis is life-threatening.

Please feel free to ask questions here! I'm glad you found us.

Abby
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"Thanks for this!" says:
pingpongman (02-13-2013)