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Originally Posted by samsonjake
Hi. My name is Shelly and I was just diagnosed with Tarlov cysts. I'm feeling frustrated, mad, while at the same time ecstatic that I'M NOT CRAZY! I currently take Celebrex, Requip and Tramadol for the pain. Not sure any of it works. I started Lysine today. Was told that there really isn't anything that I can do except go to a psychologist and learn pain management mentally. Going to neurologist this Thursday and am going to present my findings on here. I have little kids, a part time job, and I'm only 37, which I was also told that I'm very young to have been diagnosed with these. Worried about how I'm going to feel when I'm 60 when I'm in this much excrutiating pain at 37. Thanks for listening.
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Hi Shelly. I'm newly diagnosed too. Also a 37 year old mom and share all your same worries and fears. I'm still navigating a lot of testing and doc/specialist visits trying to rule out MS and Lupus right now, so finding these cysts on my spine is...well I guess it is what it is. If these cysts could be causing all my other symptoms, I'm happy to know what it is and try to move on from there. But if this is in addition to MS or Lupus...well, I can't go there right now-it's just too much. Anyway, just wanted to reach out-this is my first time joining one of these forums and posting. I don't see a lot out there about Tarlov Cysts and alternative therapies or non-western approaches. I am currently seeing a therapist for pain management, getting massages as often as I can afford, and receiving acupuncture treatments weekly. I do yoga, and am learning to meditate. I wondered if anyone has found any info on dietary changes or supplements that might help?