your shoulders sound soooooooooooooo loose

youre definitely more hypermobile than me! i havent been officially dx'd with eds either but theyre guessing i have it because my skin is very smooth and stretchy. i dont want an official dx anyways, i KNOW i have it. you might just have joint hypermobility "syndrome" either way its like tos, a damn syndrome.

are your hands freakishly soft? do they collapse? thats a sign of eds.

if it makes you feel any better, i used to have a "baseball pitchers elbow" pretty bad, now i can't do it! i thought that was joint laxity but i guess the PT helped my shoulders

pots will make you either anxious or a space cadet. i used to think this was some personality quirk growing up but its 1000000 percent POTS

http://www.dinet.org/symptoms.htm

and tos makes it worse. any pain makes it worse. you arent supposed to drink alchol or caffeine or eat sugar with pots. i avoid sugar but im a caffeine addict .

http://www.dinet.org/what_to_avoid.htm
some people like beta blockers, im a bit afraid to try them. since my bp gets low