Member
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Join Date: Aug 2009
Posts: 914
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Member
Join Date: Aug 2009
Posts: 914
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Hi Chaos,
It is really hard to work full time with this disease. I just recently stopped working. I was fortunate that I had disability insurance. My job is allowing me to keep insurance for two years. In the mean time, I am applying for SSDI. I heard it takes a while to get health insurance from them so many I'll have it by the time I need it.
I don't know what your situation is but sometimes you can get almost as much as you were making. If your husband has insurance that would be a great help.
Believe me the decision to stop took me a long time. I loved my job! I have been out now since November and I'm beginning to accept it. It has taken a lot of the pressure off me and my husband. I know I don't think about it enough but it in very hard on them too. I am in no way defending your husband there is no excuse for being a bully and disrespectful.
Take a look at if he is like this all the time or just off and on. My husband does it off and on. We just had it out a few weeks ago. He finally explained to me it is so hard for him to see me like this. He feels it is his job to make things better and feels helpless.
Maybe if you can get your husband to just talk you can find out if there is a reason for his behavior.
It is devastating enough to have this disease without marriage problems. Sending you hugs!
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