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Old 02-15-2013, 05:22 AM
Bob Dawson Bob Dawson is offline
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
15 yr Member
Bob Dawson Bob Dawson is offline
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
15 yr Member
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I was absent the day they taught science in high school, so I can't address the science of it. Even the whole thing of the double blind, triple deaf, quadruple mute "clinical trial" makes no sense to me; not to mention the sham surgery. They take the person out of the person, and then test the zombie that is left over.
When I fall off my Parkie-horse, I do not first grab the pillbox and call the neuro, I first crawl to the likes of Reverette123 and Aunt Bean for the tech-specs of what I am ingesting blindly and Ginnie changes my soundtrack to "Dislocated Boy" and I read this site to stop feeling sorry for myself and I try to attach my brain to something that looks good, feels good, and is attainable for me; and I get that kind of advice from this tribe where there are people who have tried just about everything. I do not measure anything except number of hours On and number of hours Off and the intensity of both.
So white rats on this site have always provided me with information I do not get anywhere else, and I validate by myself whether or not what worked for others works for me. But I don't do finger tapping (although I could if anyone wanted). I judge for myself the level of incapacity in the past hour compared to the hour before that. It is partly or mostly "subjective" and I know that science does not do "subjective" but I am subjective pretty much all the time, on account of it being me and all.

So I support the White Rat Self Experiments because they capture lots of information of value, as actual end-users in real life.
It would also be a case of "the medium is the message". The medical world will not notice the content of the self-experiments as much as the fact that rogue Parkies are frustrated enough to experiment on themselves.
All of this has already been going on. The changes being proposed are to get some formatting and analysis and commentary accumulated in one place. Too many good suggestions are getting lost in the tsunami of information that the internet brings us.
I hope lots of scientists get to be doubly as blind; but a couple of years ago I could not find a single thing to hang on to, I phoned Rick down in Tennessee and he told me 3 things to do and I did them and went to sleep and got up the next morning and cut down a maple tree.
There was nothing double blind about it, but I crawled out of my swamp and was functional again. And that day I chopped up all my pills and took lower doses more often, and I ingested a small portion of Rick's magic potions, which are already included in his internet signature on this site, and Rick has been evolving that list for years.
There are more Rick's out there that we have not heard from.
It is already happening; it needs some formalization and communication. I support the citizen scientists medium-is-the-message self-evaluation and kitchen-friendly self-medication and spiritual self-realization.
My sound system is on "Shuffle" whereby it plays songs in random order; it just now started playing "Last Matador of Bayonne".
Parkies are the matadors and Parkinson's is the bull. We face it straight on, fearlessly; step elegantly aside when it charges at us with its horns down, and we wait for the moment to kill the Beast.
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"Thanks for this!" says:
Arsippe (02-15-2013), Aunt Bean (02-15-2013), johnt (02-15-2013), lab rat (02-16-2013), olsen (02-17-2013), reverett123 (02-15-2013)