Quote:
Originally Posted by painman2009
Hi . i will stick with painman2009 though I do know some people who post here and am lucky enough to meet with them. I still do not know who frequents this site. I have had RSD almost 4 years. it started in rght limb now its groin , belly ,gluts.both legs feet, rght arm shoulder prt of rght arm, and head, I also suffer migrains,have carpal tunnel, in both arms, and multiple heriations.
I love physical labor, especially if it is landscape oriented, I like crafts, and I crochet as well, most of this has been severely inhibited by RSD , I love science, it intrigues me scifi is only science we haven't discovered yet.I was a writer, of poetry, music, (no longer) I loved the beach, though now can no longer go, RSD is a thief and it is hard to speak of the things I love to do as doing them is painful now. but like I tell every-one else, I woke this morning and im alive so thank god for that but otherwise still trying to find my place in the world the way i am now
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That is great that you have been able to meet with some people who can understand you. I am sorry for all your suffering, but I hope you can find some peace doing some of the things you enjoy doing and can still do. I also find sci-fi very intriging (sp?). I wish I was a writer. I have tried in the past but haven't made anything of it. I love the beach! My family often visits the Oregon Coast and it is my favorite place to be. I love everything about it! I know it can be painful to talk about the things you can no longer do. I am new to this disease and am still learning how to "let" things go. I just graduated college for a degree that I probably won't be able to work in. My dream is no longer attainable know. I now have to change my entire outlook in life, my goals, my loves, my favorites, how to raise my young child, if I can even have more children like I want, marriage, everything I thought I was going to become is no longer able to be. But I have decided that this is a chance for a good change instead of a bad one. I will look at this as a way to rediscover myself and who I want to be. I get to dream up a new dream, find new favorites, new hobbies, new friends, it will be hard and it will be sad at times but if I stay positive I will make it through and I will find people who can relate and help me.
I hope this finds you in happy thoughts.
may your dreams come true!!
Angelina
