Dear becky, Just because this condition is so elusive, i had it on my MRI from 1988 but no dr told me until 2012, its called arachnoiditis. Diagnosis is made by MRI with the following words clumping of nerve roots or peripheral clumping of nerve roots. Sometimes will say possible tethered cord or possible arachnoiditis. Im not suggesting that you have it of course! But, look at your MRI reports or maybe ask your dr if he has seen anything like that, i hope that you have low pain days! Gentle hugs!