I can now:
- Wash my hair without my arms falling down
- Hold a cup of coffee without it turning to´concrete´ in 2 seconds
- Brush my own teeth and squeeze my own toothpaste
- Type more than one sentence without fatigue!
- Grasp an object with very firm grip
- Open jars, packets and envelopes
- Hold the weight of my own upper body and arms up
- Climb stairs without getting breathless & with thighs like rubber bands
- Kneel and do tasks on floor which involve prolonged use of neck muscles
- Speak later in the day without sounding like a drunk
- Speak without loosing my breath
- Chew without tongue fatigue
- Eat safely and manage secretions effortlessly!
- Drink and eat combined consistencies with normal speed and muscle coordination
- Go weeks without choking on my own spit
- Sit, speak, eat during meal times without one muscle set giving out
- Breath freely and without thinking about it
- See the horizon clearly on a daily basis
- Accomplish a 10 second task without taking rests in between to finish it
- Get through the day without diurnal fluctuations of energy/muscle weakness
- Manage heat without illness or exacerbation
- Engage in light exercise without it being harmful
- Feel appropriate strength in previously affected muscles (except deltoids)
- Predict how I will feel 2 days in advance
- Observe someone 50 years my senior and no longer feel that age
- Have a neuro appointment without detrimental effects to my physical wellbeing as a consequence
A short Mestinon trial did work as did ice pack on very light ptosis
But it wasn´t any psychotherapy, good attitude, diet, exercise program or medication that changed things.
It was as if somebody pulled the plug and it took 2 years for the dirty bathwater to empty out.
Recovery continued in slow motion as if from a serious myasthenic accident yet with spreading continuing on its own agenda
to other myasthenic muscle sets but in a lighter & gradually fading manner.
All is now quiet on the myasthenic front........
Thank you