Member
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Join Date: Aug 2009
Posts: 642
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Member
Join Date: Aug 2009
Posts: 642
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Hi,
First realize that people posting here or on other message boards are not those who've gone into remission, as those folks are likely busy living their lives (lucky dogs). Secondly, those who are seronegative do not usually benefit at all from a thymectomy and really only need to consider it if they have a thymoma. Seronegative (including MuSK MG) people account for about 20% of all people with MG, so that automatically changes the results if people with seronegative people were included in that study.
Class I and II MG is actually fairly mild. I would guess that most here are in the II to III or greater range.
I do know one person who is in a long term (30 years plus) remission. However, it took about 10 years post-thymectomy for that to happen. She's the only person I know who has done so well, and I've "met" hundreds of people with MG over the years via message boards, forums, etc.
Not sure if this answers any of your questions, but thought I'd throw this out there for you.
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