View Single Post
Old 02-16-2013, 10:59 PM
Conductor71's Avatar
Conductor71 Conductor71 is offline
Senior Member
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Conductor71 Conductor71 is offline
Senior Member
Conductor71's Avatar
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Default Corruption of denial...indeed

Quote:
Originally Posted by Bob Dawson View Post
The guy speaking is Dr. Stephen Friend

Stephen Friend says in his written introduction:

I wonder what it will take for citizens to rise up and say the current reward structures in academia where the majority of the NIH/government grants (that's your money) is given to scientists who expect to not share their insights until submitted to journals, and current operation models for biotech where VCs patrol for breaches in secrecy around insights they have made about human diseases such as Parkinson's using samples from patients till they can take out patents. We need to show how a world of open science, building off of each other's work can be rewarded, to show how challenges and open competitions lead to sharing.
That "corruption of denial" insight rather brilliantly sums up a very complex issue. We look at that bolded statement and think how can people do that to one another? How can biotech researchers withhold key information that might alter the the lives of millions who suffer needlessly, or the FDA just let Amgen off the hook, or take eight years to "fast track" Duodopa which already has a proven track record?
I often wondered how the people who have the power to make a difference could actually not feel compassion or shame, but now I think I get it. They deny things that things could be different because they see themselves as the good guys. Researchers and doctors are noble doers in our a society; they can restore life, or make pain and suffering go away. Is it that they so identify with this role they can't possibly see themselves as operating under any dubious influences like gifts from pharma, ease of falsifying research data, or big payoffs, so they deny the corruption occurring around them. It is quite a nifty little defense for anyone casting a critical eye on their shenanigans because they want to help you, how could they possibly do anything that might hurt you. It's as if research is saying "Don't forget we publish or perish," even if it takes another 50 years, and millions still die with it (never, of it), "it's all good because we are trying to cure you." Do we have PD, we have Chronic Wasting Disease? They publish, we perish.

Last edited by Conductor71; 02-16-2013 at 11:11 PM. Reason: typos
Conductor71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (02-17-2013), johnt (02-17-2013), olsen (02-17-2013)