Thanks to Bob Dawson I have joined your community because I feel the time is now for patients to push harder - to ask their own questions and to push researchers to share their data sooner.

At Sage we are gaining a foothold in several communities thanks to help from the RWJF. Originally we had hoped patient with Parkinson's would want to start a longitudinal study that had them sponsoring each other to build up a deeper more interactive way of probing the disease. Don't know if that interest is still there.