Thread: Parkinsonism
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Old 02-17-2013, 11:07 AM
Israel Israel is offline
Junior Member
 
Join Date: Jan 2013
Location: Vermont
Posts: 25
10 yr Member
Israel Israel is offline
Junior Member
 
Join Date: Jan 2013
Location: Vermont
Posts: 25
10 yr Member
Angry


Thanks, all, for your replies and your time. I am so grateful that you really care. I am quite emotional regarding your replies. I was paranoid that I wouldn’t receive any.

I am sitting here trying to articulate my responses to your posts. It is difficult for me to gather my thoughts and put them into writing. That is why it took me so long to write my thread.

As I have said, I had one super good day this week. That’s certainly better than none. I can be grateful for that.

I will explain further regarding Lyme.

Johnt, I have read the link you gave me. Thanks. I have been tested for Lyme Disease. I don’t know what IMHO is.

Dianna Wood, I don’t know what Supernuclear palsy is, but I will inform myself regarding that. I wasn’t fired from my part time job, because my medical leave had expired. I still have the option of going back to work. I now have no intention of going back due to the stress it would create. I feel comfortable with my decision.

I don’t receive disability insurance. I am retired and have SSI and a pension. Medicare isn’t really much help. My finances are precarious, and the co-pays are not helping the situation. I never had a credit card until after this PD thing started. It disturbs me that I have resorted to using it. Soon it will max out and then, I guess, it won’t matter. I have applied to two hospitals for relief of some sort, but it’s been about six weeks and no word from them. That doesn’t include any doctor bills separate from the hospitals.

I have applied for some type of help regarding my mortgage, but was told my income isn’t enough to carry the assistance. What it comes down to, is, I either earn too much money, but not enough to pay my bills. Every time I see a doctor, I worry about what it is going to costs this time. I suppose the house has to go, but I’m not ready to deal with that. That’s another matter that I don’t care to get into. Thanks for keeping me in your prayers.

Aunt Bean, thanks for your reply. See below regarding your statements.

Bob Dawson, thank you for such a long reply. I certainly will follow through and keep you all advised what’s going on. This will take some effort to do.

I notice that you are from rural Quebec. My Mom was from St. Chrysostome, Quebec. My Paw from Ottawa.

I am going to attempt to put this in outline form.

Neurologist is in a major teaching hospital, doesn’t believe in Lyme. Dxd Parkinsonism.
GP doesn’t believe in it. Sarcastic reaction from him. I told him about the problem in my groin, but didn't think it was serious enough. No longer my GP.
No Lyme specialists in my area. Closest about 70 miles away.
Saw FNP in town who is educating herself regarding Lyme. Had tests does. Came back negative. On first visit immediately put on Doxycycline Monohydrate 100 mg, but couldn’t tolerate the upset stomach.
Saw her last week regarding tests. She will see me in a couple weeks to see if I respond at all to the Sinemet. If not, possibly Lyme. Or, something else.

While at FNP, last week, she checked me for pain I was having in my testicles. (My Paw had testicular cancer.) She said possibly two inguinal hernias.
Will see urologist tomorrow. She had the appointment before I returned home.

I didn’t mention this in my original post due to the fact it was too long to go into. I hope that I haven't misled you. Thanks for your patience.

I am close to an hour and a half to compose this, I think.

I do have to say, I suppose, that things could be worse. However, there are occasions when I don’t think so.

I still don't understand why this doesn't show up on the new posts section. Am I missing something? Any thoughts?

Again, thanks.
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