Originally Posted by Rrae

I just wanted to say "Hi" and to thank you for sharing
I am so very sorry to hear what you've been through and still going through. I wish the doctors could give you a better explanation to what may have gone wrong. I've heard of cases where the patient's body completely rejects the unit, as it is foreign to the body.
But what you describe almost sounds as tho you became very ill right after the implant and you had a fever.....I'm wondering if the doctors ruled out infection?
I completely comprehend the migrated lead bit. I also had that problem, and you're right, it causes stabbing pain, or in my case a very painful 'pinching' feeling, as tho I was being bit by a huge insect.

I'm hoping your body will heal in time and the nerve pain will simmer down. I've battled neuropathy for 6 yrs and boy is it a B-@#&*%!! Over the years since I've had my SCS tho, I've noticed the neuropathy has been getting less and less. Not sure if it's because of the unit, or if this would be happening even if I wouldn't have got the unit.
Please stick around. There's plenty of caring souls here and you've certainly been through the mill. If you click on the link that Mark provided, it'll take you down to the active posting where more people will see it. I know you'll get alot of feedback, and perhaps someone has been thru something similar.

Glad you found us, Dawn

Caring,
Rae