Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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gr8ful, I wish there were more studies on thymectomies. They (doctors/researchers) are trying to figure it all out but it's not that easy. Try to find an MGer not on meds who had a thymectomy. Usually when MG is diagnosed, meds are critically necessary because a person has gotten so weak. Being medication-free is the only way to tell if it's the thymectomy alone putting MGers into remission. Often it's the meds that are putting them into a drug-induced remission.
Some say that the reason a lot of women in their 30's - 40's get MG is due to fluctuations in hormones! There are so many reasons why MG could get worse or better.
Sure, what 4-eyes said is true about statistics, etc., however, seronegative MGers are often undiagnosed so those statistics might be quite incorrect. And seronegative doesn't mean there aren't antibodies causing damage but it could simply mean that those antibodies haven't been discovered yet.
The decision to have a thymectomy is a difficult one. Surgery is also very hard on the body and can take months to recover from. You have to look at your body in total and not the part of it that has MG.
Yes, surgery is supposedly best when you are seropositive, have had MG less than one year, are younger, etc. but there are studies that contradict all of that too.
Sorry, you wanted answers and I'm just mudding up the picture. But that's the reality. There is no simple algorithm for who "should" have a thymectomy and what exactly the outcome will be. There are too many other variables involved to proclaim anything.
Are you going to have the surgery? If you do, I hope it goes really well and that you do benefit from it.
Annie
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