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Old 02-18-2013, 09:45 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hey, Slashman. Welcome. Do you have any other name you'd like us to call you?

A good MG expert and pulmonologist can tell you the difference between MG and asthma symptoms. Allergies are all about avoidance or the proper treatments. Allergies shouldn't cause symptoms similar to MG at all, although the drugs like Benadryl can make MG worse! I have all of those things too and it's easy for me to tell what is what. If you have MG, which it sounds like you do, there's a lot to learn about it.

Do you have a pulmonologist? If not, and you're diagnosed with MG, get one. You should have breathing tests done for a baseline and then again when you are getting worse. Pulmonologists work with neurologists in a hospital setting, for example, when an MG patient has an MG crisis. An MG crisis is where you can't breathe in or out well, are generally weak or can't swallow well. That's the point, as Abby said, when you need to dial 911.

If you do get worse, it doesn't matter if you don't have an official diagnosis yet. You really need to seek out help in an ER because MG can "tank" pretty fast, especially if you're not on any medications yet.

I know what you mean about "management" but many of them did get there by working those same jobs. And you'll find that a lot of people can't cope with someone they know getting sick because they don't want to contemplate that ever happening to them. They are afraid of being sick, so they "mock" someone who is. Sad.

I hope you do take it very easy. This is not a disease to mess with. It gets worse the more you do (and relatively better with rest and drugs). The more you push, the more it pushes back!

Jmount, I'm glad you are doing relatively okay. I'm sorry you're out of remission. I'll bet it felt great while you were in it!

Slashman, Please keep asking questions. And call your neuro if you get worse or dial 911. Extremes of heat and cold can make MG worse, as well as things like an infection. Get enough sleep and take a nap if you need it! Sleep is like a prescription for MG - without it and you get worse. I hope you'll get answers after your test. Hang in there! It's not fun being sick but MG is manageable. The more knowledge, the better too.


Annie
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