Agreed. I've asked four doctors about the elevated CK and bili, they've blown the numbers off as irrelevant & ignored the request for additional tests to find a cause for the elevated numbers. I'm searching for a different intern/endo in hopes of finding one a bit more responsive.

After the negative SFEMG, the neuro expressed he would be happy to treat me if I could get a diagnosis elsewhere since he himself couldn't identify what was causing the symptoms. I'm reaching out to a neuro in Houston who specializes in myasthenic syndromes. He has a bulldog reputation for not letting up until he finds what's wrong. I've graduated from trying to prove this is myasthenia. If they can just figure out what this is where I can hopefully get it treated, I'll be happy. And certainly I see a lot of my symptoms overlap with those of polymyositis.

Does polymyositis respond to mestinon and tensilon?