Thank you so much for your reply!! Yes, that does sound a bit familiar.. before I had IVIG I coiuldn't lift my arm to do my hair for even a few seconds.. now it's better.. but I do still feel 90..
One thing that has become dramatically evident with my symptoms in the past 2 years is that i have MAJOR exacerbations with hormones (Premenstral mostly).. My speech gets weird, swallowing .. sometimes my tongue feels numb.. after a few days into my cycle I'm back to my new baseline.. Do you have this too?