It doesn't look like anyone has posted in here for a while... but I thought Id try and see what I get. I am 25 and as of July 2011 I have been suffering from what they just recently diagnosed as PNES. My seizures look like Tonic clonic seizures, I have an aura or warning before hand for anywhere from 5 mins to 30 mins prior to the seizure or they sometimes do not result in a seizure.
when I seize it lasts anywhere from 15 seconds to about a minute, and I have on occasion had 2 or more back to back. Post seizure I do go into a "unconscious" state where I will roll my eyes and flutter my eyelids, Sometimes I struggle to breath, drool or spit up and I usually moan or babble(make sounds) a little. This state can last anywhere from 5 mins to 20 mins for me. I usually come out of it very confused and upset. I do not remember most of them, and the little that I do remember is usually the start of the process.
I have been having these seizures sometimes weekly. The two months I have had 10.
I was just given the final diagnosis 2 weeks ago that this is PNES. I was shocked and felt crazy, they had already been treating me with very high doses of anti-convulsant's.
I havent been able to work in the past year because I cannot find a company that will hire me based on my unreliability. So I have resorted to taking some clients from home. I cannot drive either. The worst of it is, I cannot seem to get any information on treatment for people with lower income households. My husband makes too much money for me to apply for Assisted income.... but Psychologists specializing in cognitive behavioral therapy are upwards of $160.00 a session!!!! The last Psycologist I spoke with I asked if she knew of any other options for me and she literally told me to check myself into the psyc ward at our local hospital. Is anyone else experiencing this lack of support??? I feel alone and trapped right now and am looking for ANY direction that anyone can lend.