Originally Posted by AnnieB3

Dallas, I'm not a guy - will I do?

I'm sorry your MG has come back with a vengeance. Why can't Bruce Willis do a Die Hard movie about MG? Or why can't our MG movie end with MG being vanquished?!!

Do you have a good neurologist? What about a pulmonologist? A pulmonologist can asses your breathing and maybe do an overnight oximetry instead of a full sleep study to see how you're doing at night. You might benefit from short-term use of a BiPAP or CPAP.

Is the trouble you're having sleeping due to being short of breath? It's possible you could have apnea too. I prop myself up with a couple of pillows but sometimes sleeping in a recliner works best.

When MG comes back like that, I think it's worthwhile to see your primary doctor to rule out other autoimmune conditions like thyroid ones (Grave's disease) or other mitigating factors like a Vitamin D or B12 deficiency, adrenal issues, etc. Did you have your thymus out before? Could it be possible that it's growing?

I really hope your docs can get you feeling better again. Is there any way you could go on short term disability, so that you have more time to recover?

Hang in there. BTW, there are guys here who vary in ages and have gone through a lot with MG. Everyone here has a lot to offer, including amazing support.


Annie