I've been getting worse over the last few months, due to the neccessarily reducing of prednisone. Though the last 3 weeks it seemed to stick to "severe, but survivable". I've always been very bulbar, but now I can't talk at all. At first, I had times I couldn't talk, or times where I was nasal and sounded drunk. But now, it's fulltime for a few days now.

I don't know what I want to reach with this post...but I just feel off. I never thought this could be só awful, not being able to make sounds or whatever. I feel kind of trapped in my head so to speak. I can type on a light iPad, but still I have this urge to talk or just make sounds or whatever.

Have you've ever experienced this?