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Originally Posted by CRPSsongbird
YA. I'm starting to feel very nervous. The doctors are starting to say things like not sure what else they can do, and permanent......thankfully its hasn't progressed beyond slight mottling, and the pain, and coolness. The pain spikes up and down, I have good days and bad. Sometimes I have a few days that are nearly pain free! At those times I start thinking maybe it's going away! And then it comes back with a vengeance.....I'm sure you all know how that is. The pain free days are few and far between, I am still waiting to see the Neurologist and am trying to get into a "pain" clinic. I really need something stronger than Tramadol when I have my normal daily spikes. and definitely when I have my bad days!! I DID get more sleep last night thank goodness, my arm had calmed down from the night before, but I could feel it starting to gear back up. so I slapped a Lidocaine patch on before it got too bad......ahhhh sweet sleep! lol I hope you feel better soon!
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Yay for sleep! I am very happy for you! I do know about those pain free days that are just a tease. lol A couple days ago my pain was down to like a 5 and I was totally thinking maybe it is getting better and possibly going away, but then it really turned out to just be a fake out! lol The last two days it has so come back with a vengeance! I think it is worse than before. My whole leg feels like my ankle did, which sucks because the burning is up into my hip joint and left back side. I did get in to see my neurologist today but she can't give me narcotics because of her office policies, but she thinks I should be on them. So I have to hope my primary doctor will, or that I can figure out a way to get off them. Which is my real goal. I would love to get off them. I really don't like taking them. So we are going to try uping my Lyrica and using muscle relaxers. Fingers crossed here!! Good luck to you, and like always I hope you feel better!!
Angelina