I"m so sorry to hear this.. how anxiety provoking that must be... I had a few hours once where I couldn;t really get sound out - it was like my throat would collapse in on itself.. and literally no voice would come out.. and if it did, it sounded like a frog.. as it was trying to get around this collapsed throat.. I couldn't swallow during that time either.. I basically went without eating or drinking for a few days until it was IVIG time.. it was scary, so I can only imagine what you are feeling..

Are you on any treatments?? I can't remember- are you seronegative? what was the reason for them reducing your prednisone? Did that seem to control things?? could they give you a loading dose of IVIG? is your breathing and everything else ok? As limpy said.. when I was at my worst, my fingers and everything were just "floppy".. I felt very anxious about taking care of myself, much less my kids and family... thinking about you, and sending you get well thoughts your way!