|
Member
|
|
Join Date: Oct 2012
Location: canada
Posts: 553
|
|
|
Member
Join Date: Oct 2012
Location: canada
Posts: 553
|
Sorry to hear things are not going well. It really sounds to me like some vision related deficiencies. It was such an important diagnosis for me...and finally getting prisms has allowed me to read, use the computer, and do better with my vestibuoar rehab.
I have put a link to some general info in case you don't have it.
If I recall correctly  ??, you are still waiting for the neuro-opthamologist. I would suggest going to an optometrist who does similar testing ( for binocularity post brain injury!) and who is into the behavioural side of vision. I had asked mine to give me names in Ottawa...she did...and I lost them! I will try again and send you those names.
http://www.braininjuries.org/
Good luck!
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).
Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!
Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
|