Quote:
Originally Posted by pingpongman
It took 2 1/2 years to find what meds work for ME. We all respond differently. I will say that these drugs we take are a danger in themselves. You need to discuss the dangers with your son's neuro. It's a long hard journey and I wish you and your son the best. One piece of advice go into all your sons Dr. appts if he agrees. Four ears are way better than two. I know as a patient I don't hear or understand half of what the Drs say.
Best to you and feel free to ask any questions you have. These are the greatest. I promise you that you will get an answer.
Mike
Get copies of all tests, bloodwork ect.
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Thanks pingpongman for the advice! My husband and son are at the neurologist's office right now. Our daughter inlaw teaches so she can't accompany him. You are certainly correct. Four ears are better than two. Our son also carries a small recorder and records the doctor during visits and during important phone calls. That way we are all informed when we listen to the recorder.
We are so thankful Son was able to talk to someone this morning who told him about a doctor near our area who specializes in MG patients and sees them daily.
Son's surgeon is scheduling an appointment for him with this specific doctor. Seems this doctor is well known for balancing medicines and avoiding the most harmful meds while still helping the patient. Praise God!
Once again, thanks for your response and support.
Interested