Thread: Maxed out
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Old 02-22-2013, 03:39 PM
SmilinEyesMs305 SmilinEyesMs305 is offline
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Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
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I've been at this almost two years, and I despite being able to go to grad school part time, and a internship for 12 hours a week, I feel like I'm still in that hell.

I totally get it when you say that your doctor saying you look better, etc, makes you're family think you are better.

My boyfriend think since I'm doing things in the real world, I'm better. Despite a huge increase in symptoms, visual problems cropping up, etc, he refuses to see that I'm still in hell, trying to convince everyone I'm trying on the outside, when I just want to give up.

It's become a big act for me.. go to class and put a fake smile on, go to my internship, fake smile... despite the pounding headache, the ringing tinnutis, eye pain, endless fatigue and back pain.... of course, I look just fine. Not to mention feeling useless, as I have mountains of coursework to do, but can only get a small amount of work done until my brain gives up on me. But yep, I'm "healed"!

Some might call this functioning, I wish there was a way for them to see how it feels from my perspective. This is not functioning, this is not living, this is merely existing in Hell and trying to fool others that I'm not, so they don't tell me I'm being negative, too focused on my symptoms, or my personal favorite, that I just need to stop worrying and I'll be good as new.

Ugh... I didn't mean to steal your thunder... But you are right, it feels good to unload with someone else who understands.

Prayers to you and your family. We're all here for you. You are never alone in your pain, struggles, and frustration here. Keep venting
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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