Hi Judy,
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This is just the most miserable, fickle, degrading disease ever!! But you are living proof to the question posted here about the worry of a spouse bailing out when the other has MS. I admire you and the love you have for Marg which includes the bad times along with the good!!!
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I'll certainly second that description of MS!! Spousal separation/divorce in MS is extremely high. I've heard numbers as high as 85-90%!! Marg and I have certainly been through the ringer for the last 10 years and as the MS slowly progresses, it doesn't become any easier.
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Have the two of you thought about trying Aimspro? You're in England, right?
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We live in London, Ontario, Canada. I've followed the info about Aimspro and everything surrounding it. Not sure it would do Marg any good at this point but that's a mute point since it isn't available over here anyway.
The Prokarin keeps her head above water as far as many of her symptoms go but you have to know that Marg has probably suffered a lot of axonal damage over the years. Unless someone comes up with some miracle kind of treatment in the next few years, I'm afraid that she will have to live with the disease and its progression and whatever it brings. Not a great prospective at the moment but certainly reality.
Take care.
Harry