Quote:
Originally Posted by ginnie
I believe a person knows their own body best. If you think this is nerve damage, I would go with that gut instinct. Most of the time we are right when something goes wrong, even if the doctor doesn't agree.
This may be another way to go about getting help. See a physiatrist, not only do they deal with pain, but they deal with the "whole" person from a cellular level. They can do all the pain docs do and more, including referrals if there is something with the nerves. You do need someone to pay attention to you, and listen when you tell them you think this is nerve damage.
Healing is hard enough from surgery, with out this additional worry. I would also call your surgeon once again, and state clearly, that something is wrong. Be as pro-active as you can to try to get some help. You are in some serious pain, and I so hope that some doc, will pay attention and address this issue. Troop to the ER if you have to. Sometimes the sqeeky wheel gets the greese. I am the type of person who will find the help, with every effort in order to feel better. I have switched doctors a number of times and finally found those in my corner, that have compassion and will listen to me. It took alot of effort to find these physicians. Since then, my health in general has improved. I so hope that happens for you. Please keep in touch with me. Let me know what you decide to do. Don't ignor it, fight to find the answer. I care about you, and you are not alone with dealing with it. Anyone who has experienced some severe pain, has empathy for what you are going through.
I am here to listen any time you need to talk. My prayers are with you. ginnie
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Thank you. I have seen another neurologist. He did the nerve conductor test which showed that I did have nerve damage. He is the oe that put me on neurontin but he also prescribed anti infammatory med which i cant take because im not showing any fusion. He is more of a pain mgt dr. but i got scared about him prescribing the other med. my neurosurgeon just doesn't seem to take it seriously. My family is also wanting me to get all my records and go somewhere else. I barly slept last night. The area around my triceps and biceps hurt and burned so bad. I finally used ice packs on them at 3:00am which did help. The area around my collar bone also hurts. My wrist even hurts and my fingers are stiff. right after surgery my left arm was so heavy, i could barely move it and my fingers were drawn. ive gone from that to extreme pain, not always in the same location though. surgeon just says the nerves are angry and need time to heal. he has be more concerned telling me how everything looks good than he has been to listening to me. i think you are right, it is time to find someone who understands and can really identify what is causing the pain so we can find someway to "fix" it. I'm getting desperate. Thank you for listening. I'm so glad you kept pushing til you got the help you needed.