Originally Posted by zoey07

I am 21 years old.... I played softball my entire life and was diagnosed with neurogenic thoracic outlet syndrome in 2008. In January 2009 I had my first rib removed, my scalene muscles removed, and my pec minor released... then continued my softball career. In the same right arm I was still having nerve pain and in August of 2010 I had ulnar nerve transposition surgery and again, continued my softball career. (Doctors orders said it would be okay to) Soon after however... I had to stop and receive a second neurogenic TOS surgery in October of 2011 where they reopened one of the incisions and removed scar tissue. Needless to say, I was done doing any sort of strenuous activity. I've done all the physical therapy and have taken medication and it is still difficult coping with the nerve pain.... but that is not what brings me here. In the same arm, my hand is now turning purple off and on throughout the day and freezing to the touch. My arm also has slight swelling in the shower and turns blue. I realize these are signs of Venous TOS and I have a doctors appointment next week with someone different than who performed my TOS surgeries. I just need some advice or help... anything works. I am one who deals with pain well and doesn't complain about a lot... but I cannot live like this!