Most of us on IVIG for a prolonged period have been on large doses of mestinon, prednisone and another immunosupressant before we started IVIG. It doesn't sound like you are being treated for the MG - IVIG as a monotherapy isn't going to do it if immunomodulation isn't being done. A lot of us on longterm IVIG in addition to our other meds will have a port placed as our veins can no longer tolerate repeated infusions. Sometimes you just have to swallow, know that there are side effects to all of these meds and deal with them as best you can. It's up to you to decided what quality of life you want to have and if taking meds is part of it it's up to you. Good luck on your decision.