Thanks yall so much... so do yall get sore veins with the IVIG??

The sticks of the IV's don't bother me so much, and as of now I still have decent veins (I never let them use my AC veins, as I want to save those for emergencies - yes I'm paranoid. but I don't want to get in an emergency and not have any access).. I worry though.... If my peripheral veins feel so irritated and mad, if I got a port, would that just mean the deeper "more important" larger veins were mad!? I can deal with discomfort.. it's not fun, but it's the least of my worries.. I just don't know if the reaction I have is adverse, or normal? or if getting a port would eliminate the vein irritation part?

robocar- I think my Dr was trying to avoid the immunosuppressants, as I work around sick people, and I have two small kids who are always sick... they have their own risks too.. I think they have the mentality that IVIG is the lowest risk of all these things.. they tend to add on cellcept or imuran if IVIG alone isn't working.. they seem to not be as big of fans of steriods..

Mike- when you say if you were younger you'd think harder about it - what do you mean? You would WANT the immunosuppresants, or be more afraid of them? I did steriods once (i started out on 60mg though).. and was so weak and felt like I was gonna drop dead.. I realized from here that I should have been started low and worked up though.. it was awful!

Tracy - are you on anything else besides IVIG? I'll put more thought into that whole port idea too- thanks! I think I need to do it every 2 weeks, but with full time job, kids etc.. it's hard to find the time.. though when I can't breathe or swallow or walk well I feel completely stupid! The best I ever did was the 2nd round of IVIG (did 3 days of loading dose in the hospital, and then 3 weeks later had another round and BAM I felt CURED!!! ) I often wonder if I should have another 3 day loading dose to boost me up?? You ever do this? I feel like I build a tolerance or something!?!