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Member
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
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If I were younger (I'm 72) I would think harder about cellcept, imuran or prednisone. I have been at this for 2 1/2 years and had 4 skin cancers removed in the last 12 months. Now I'm not saying it was the drugs but could well be. I now have a couple more places that need checked next appt. Imuran made me so sick, I lost 35 pounds. High doses of Prednisone got my legs so weak I could only lift my feet 2 inches. IVIG hasn't done much for me nor has Mestinon. I am on 17 1/2 mg of Prednisone, 2500MG Cellcept and Mestinon 60mg 4x a day. I'm doing ok but what works for me may not work for anyone else. I have 4 positive antibodies.
Mike
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