Originally Posted by LiveLoveandTrust

First of all, take a deep breath. Most people diagnosed with TOS have been seeing doctor after doctor for many years before getting a diagnosis and we're all alive and kicking. I had arterial, venous and neurogenic TOS symptoms for 5 years before finally having surgery and I never had a clot. Now, this does not mean that TOS isn't serious, but it is something that you have time to see a surgeon, get a second opinion, get a certain diagnosis and go forward with surgery if that is appropriate. Clots take time to form and you'd need one to have a stroke.

A clot is painful- very painful. If you had one, you'd be going to the hospital of your on volition before you had a stroke. A stroke is a possibility, but it's not at all common and many TOSers live with their TOS and live long lives.

I can relate with you. I have post partum anxiety and my anxiety mostly surrounds medical professionals because I've had so many bad experiences with them, yet, continue to have to go to them. Anyway, have hope knowing that with cervical ribs, symptoms being relatively new, being young, having relatively low pain levels and arterial TOS you have a great chance of having a full recovery and a normal post-op life. You'll read on here a lot of bad experiences, but that probably won't be your experience so don't let those stories frighten you.

Anyway, I wouldn't worry about a stroke in the middle of the night or little twinges and tingles. Just get yourself to see a TOS specialist- a real specialist, and see what they have to say. You've got plenty of time to wait for a consultation.