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Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Celeste,
I am sorry that you have low blood pressure, the side effects of which can be truly debilitating alongside those of MG.
Is it worth you having the low blood pressure investigated? Keeping a diary at home to show when your BP is low is a great place to start as it can help you identify triggers - heat, exhaustion, dehydration or eating a carb heavy meal can all drop your bp.
It maybe worth finding somewhere tha can do a Tilt Table test to see if you have postural hypotension. If you have a look on the Dinet website that I posted the link for they have a list of Drs in the USA and all over the world that diagnose and treat patients with autonomic nervous system problems.
I hope you get some answers and find some way of raising your bp so that you feel better.
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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