Mike- yea.. I feel like I have been doing so much better since it's been cold. I'll never forget right before I crashed almost 2 years ago, I got out of a hot shower and couldn't move or breathe.. I just lied there like a lump of jello on the floor.. ugh.. last time I took a hot shower!

Annie - thank you.. No, I don't feel like I have been thoroughly diagnosed whatsoever.. I Have a good internest, I have a GI dr, a rheumy, a neuro (i've seen like ten or fifteen of those).. i've had cardiology evals too.. I've had so much testing.. They are talking about seronegative MG and doing a SFEMG... however I do have numbness too (documented non length dependent neuropathy diagnosed by epidermal nerve biopsy).. .. So it's hard for everyone to wrap their head around all of this - the fast crazy onset, post partum too.. is it all one disease process causing everything, or do I have multiple issues..

I took time off from the being a lab rat for a while, as it took months and months and months of going from dr to dr and SOO much testing that once I got treated and got IVIG.. i needed just to simply live my life best to my ability and take a break, as my soul was beat down from it all!

I have been doing well, and as I said the mentally tough part is - do I accept this is as good as I can get, I am soooo thankful for where I am at.. but every second of everyday I feel sooo abnormal still.. so I also wonder if I am cheating myself and my family by not pushing forward and trying to find a better treatment ... though everything has risks.. and if something went wrong I'd regret it! (My mind is tired from thinking about this all)!!

Anyhow.. I am getting back on the testing bandwagon.. I saw my internest last week , my GI dr tomorrow, rheumy next week and neuro in March or May (can't remember).. so I still have PTSD from my previous dr's appointments and HATE going to them with a passion.. but I am going to give it another try! Though multiple dr's are talking immunosuppresants, and I dont' know if I'm up for that! My sibling has crohns and is feeling so much better on meds.. I have a raging family history of autoimmune stuff.. ugh