Thread: IVIG tolerance
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Old 02-25-2013, 11:12 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Have you been tested for Celiac Disease and IgA (if it's low, it can be a false negative)?

Do you take acidophilus or eat yogurt to keep good bacteria in your body?

If you have clinical PTSD, you have to seek out an expert to talk to about it or it WILL get worse. There are tools you can use to keep it from happening too much, even while doctoring. Although I have to say that I saw a new doctor last week and had one of my worst PTSD episodes ever. I was able to work my way out of it though! This is not a thing you should handle on your own. There's a new "touch" therapy they're doing with Vets and other people with PTSD and it seems to be working.

I wish you had a very good immunologist to pull some of this together for you. And if you haven't demanded to get that immunoglobulin testing for your records, just write a letter to the medical records department and get it. They are expensive tests and you don't want to have them redone if you don't have to! It's your right to have the results.

I know how much doctoring can wear you out and it's useful to take a break from time to time. You can get to the point where all you see is the health issues and not WHO you are! I am not the sum of my health issues but it can feel that way, especially when you see yet another doctor and have to list everything wrong with you. I try not to think about what's wrong with me on a daily basis but what's RIGHT with me.

It has not been a fun time for you. The more difficult the situation is you're going through the more fun and the more coping skills you'll need. The most important thing is taking care of yourself, no matter what that means.


Annie
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