Thread: IVIG tolerance
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Old 02-25-2013, 11:24 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Thanks so much Annie!!! I appreciate that!

As far as the IgA, I was tested once, but i was already on IVIG, so they weren't sure if it was accurate.. it was normal

The celiac, I have been tested for several times as well.... however I was already gluten free.. As i had GI issues that started the entire mess.. I was desperate to feel better, I was hospitalized for the GI stuff .. and researched it all, and have 2 family members with posible celiac.. so i went strictly gluten free and have been for 2 years now.. however I'm starting to have GI flares despite the diet now that I'm stretching the IVIG further out. I still stay gluten free, as i'll try anything to help, and frankly if I can control something in this whole mess, then that makes it feel better.

as far as the PTSD thing.. it's mostly from that first dr appointment when he said he thought I had ALS ( i was 30 years old, just had a baby.. it was a friday afternoon he said it so casually and then said see ya monday for the the emg etc).. ugh.. now I fear going to the Dr and hearing bad news again.. I was alone in the office at that time.. I'm getting better about it.. but I have feared the Dr's offfice extremely since then.. ugh.. too many practioners out there that need to brush up on their patient and clinical skills!
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