Thread: Scared.
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Old 02-26-2013, 01:04 AM
starfish43 starfish43 is offline
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Join Date: Jun 2012
Posts: 25
10 yr Member
starfish43 starfish43 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 25
10 yr Member
Default Clots

Well, I can't comment on other people's clots or lack thereof. I can only tell you about the one clot I had that led to my diagnosis (venous TOS). Mine was not painful so my only warning was that one of my hands turned bright red. It still gets a little red even though my clot resolved, but never as red as when I had the clot. I had no clue what was wrong with me, and I felt silly going to the ER but sure am glad I went. My two cents: It takes a while getting use to monitoring your body as needed without obsessing. I am still learning how to find the balance after many months. Be kind and gentle with yourself, and just know that our bodies have an amazing capacity to heal. The most dangerous time with TOS is the time period prior to diagnosis, in my opinion. At least once we're diagnosed, we are clued in that something is wrong, and can take positive actions. Yes clots can be dangerous but so can driving a car, riding a skateboard and cutting steak with a knife. That said, I've gone to doctors for my share of "false alarms" and thankfully now feeling less embarrassed about it. My friends who have major medical conditions understand it's important to monitor my condition, and yet also important to live without worry 24/7. So very tough to do, but it's getting better for me with practice and I look forward to the day when I will be getting appropriate treatment and won't have to be quite so careful.

Quote:
Originally Posted by Rini View Post
I have been having issues for a little less than 6 months. I was having neck pain which i knew was from bad posture and excessive hours at the computer. It started to get worse by accompanying it with dizziness, vertigo, trapezius (idk how to spell that) muscle very stiff, tensions headaches etc. I didn't really have arm pain at all. Finally i went to the doctor and had an X-ray done, thinking they would tell me i have a herniated disc in my neck (to match the one in my lumbar.)
It showed on the X-ray that i have 2 cervical ribs (one on each side) and the doc thinks that i have TOS. She raised my arms and such, said the pulse goes away in certain positions, which would explain why i always wake up with my arms asleep (stomach sleeper.)
I'm only 20 and i suffer from extreme anxiety attacks. I'm worried that my TOS is arterial from the ribs (though I've lived 19 years with no problems) and that i could develop a clot. I've just been researching as much as i could and i don't know what to do. every weird tingle or twinge in my upper arm/neck area or when i get dizzy i freak out.
Anyone have any advice? Is this condition deadly? Would a clot be obvious? I'm afraid to go to sleep and have a stroke in the middle of the night or something.
Thanks to any answers or posts, i don't know where else to go.
-Rini
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