Quote:
Originally Posted by hopeful
Hi, I have had a lot of the problems that you have. Actually a few years before this started in my legs etc. I was dx'd with vulvadynia and vestibulitis.There are external creams you can use for this. Just like you they assumed I had interstitial cystitis. I did not. Ask you GYN to test for any and all yeast infections. I went to someone who specialized only in this and they found one. I had to use med for it for brief period and all the symptoms went away.
A few years after that I developed neuropathy. Idiopathic is what I'm told. I know you said you had food intolerance testing done but try a gluten free diet for a short period and see if it helps. I had terrible stomach burning and pain. I had my galbladder removed and lots of testing, The only thing that showed was delayed emptying. I started the gluten free diet and it took a little while but the burning went away. It did not help my other symptoms but my stomach does good these days. Also, I'm glad you have decided to keep a journal. It really helps to find what foods your neuropathy can't tolerate.
I think it is wonderful that you have been able to continue to exercise. It is also great that you have found someone. A strong support system is essential.
I don't know how you will feel about it but if you want to try meditating. It helps me so much with my emotional state. I started doing it to sleep but just recently I am trying to do it everyday. It reallly helps my attitude and relieves my worries.
Good Luck with everything!
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Hi Feather,
I just wanted to comment on your post again. Back to thyroid, you say your on the high side of normal? In Australia T4 lab range is 9-19. At a T4 of 16, I had lost 1/3 my hair, lost 10 kilos in a month. I ate like a horse but within 5 minutes I needed to go to the bathroom due to increased gut motility. Also tremor,palps, frequent urination, and flushing. At 16 My numbers were within normal range still. My GP was happy with those numbers, but having a strong maternal history of Hashimotos, i requested a referral to an Endo. The endo sent me for a scan which was a radioiodine uptake scan and the result showed diffuse toxic thyroid. Along with my labs and my symptoms she diagnosed me with Graves. I didnt take antithyroid pills tsraight away and my T4 kept on climbing and i lost another 5 kilos without wanting to and I started on the meds. I had become unwell from being hyper and then crashing back to norml. As you can see the effects were systemic. Every organ system was involved, every cell. I am not a hormone expert but with your Gyno issues which are hormonal based and possibly hyperthyroid and a systemic manifistation to your neuropathy, I would be at least considering this direction in the absence of other systemic autoimmune illnesses. Hormones affect every cell in the body and can cause widespread symptoms that may or may not fully resolve even after the imbalance is corrected. There is no definite way to know for certain if my thyroid caused all my problems but mine is autoimmune therefore quite a possibility. I also have chronic cystitis and That burning you mention. Though i think it's my female hormones that have caused this.