Well I had my long awaiting SFEMG today (I am seronegative). The doctor said he would have the results to the neuro-optomologist by next Monday. He did not tell me they were abnormal but he shook my hand when I left and wished me the best of luck and said that he hoped these tests results would get me the treatment I needed to feel better. So I kinda think I know the results already. I will call the neuro-optomologist next week to be sure. Then I need to make a plan on how and what to tell my daughter. She will be turning 15 in 2 months.
I would appreciate any advise or feedback on your experience on what and how much you told your children. And as always thanks everyone for your very needed support and sharing of personal experience.

kathie