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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Bob, Celeste and Abby, Thanks for the support. I have to say I feel more comfortable now and confident that I will get further productive treatment. The doctor that did the SFEMG was very nice and very knowledgeable. He talked about additional treatment options besides mestinon such as celllcept, IVIG and plasmaphoresis. He mentioned that my neuro-optomologist may direct me to a neurologist for further more aggressive treatment. If so I think I will want to go back to the neuro that did the tests. I like his manner and how well he explained everything. I did find out that my appointment did not get bumped up for a cancellation (originally suppose to be June) but that they bumped me up because of my worsening symptoms. The whole staff seemed to be very compassionate and professionals. I feel like I am finally finished the run-around and have met the group that can competently and compassionately treat me. I always think things happen for a reason and that this is the way it was meant to be to find the right doctor,
Bob, I hope things go as well for you. I share your relief in knowing that a diagnosis is finally at hand. Let us know how you make out.
Thanks again
kathie
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