Hello! I am new to this site and to myasthenia gravis in general.
While I don't have 100% diagnosis yet, my neurologist seems to think I have it.
I knew I had Sjogren's and CFS, but I have left eye droop & weakness as well as extreme muscle weakness. If I'm sitting..resting, I'm pretty much okay. Any exertion though, forget it.
One of my questions is this, before I got the diagnosis of Sjogrens and was put on Plaquenil, one of the most awful sensations I battled was my throat. I couldn't describe it...like there was something in my throat or like one 'wall' was dropping inside, and sometimes just felt like someone was holding a stick up against my throat and pressing hard. I still have hints of it and I HATE it.
Is that something any of you have experienced? I'd tell Sjogrens folks about it and my rheumy and never really got any feedback. Is that because it's more typical of MG?
I'd truly appreciate any input you have for me.
Happy to be here!