Member
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Join Date: Nov 2011
Posts: 576
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Member
Join Date: Nov 2011
Posts: 576
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so sorry to hear you are going through this and with a little one too! I got sick when my youngest was 6 weeks (my oldest was only 16 months at that time - so we had our hands full too)... it broke my heart to be sick and unable to care for them.. but they don't know the difference at least!
Are you Musk positive? As the others said about the IVIG.. i had only slight improvement with the loading dose (I couldn't tell if i was better due to resting in the hospital, or if it was placebo effect).. the 2nd round 3 weeks later seemed to really do the trick.. we have also had to play with the dosage of the IVIG.. otherwise some people just don't respond do IVIG and like others said just have to find the right cocktail - prednisone can make some people worse too.. or it can be the best med for others..
Are you at a local neuro or a university specialist? or MG specialist?
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