Thanks for the kind wishes. I'm just waiting now for my insurance to approve a surgery and hoping they don't try to delay or fight it. I have no experience prior with this company so I don't know what they're likely to do. I had physical therapy also although from what I understand when you have a clot from venous TOS (aka Paget Schroetter) surgery is the normal recommendation. Your throbbing headache symptom is not one I have but some people I know with neuro TOS do get headaches. And I know people say ultrasound isn't perfect but in my case it was the first test that showed my clot. Then the venogram confirmed it. As venogram is invasive the drs don't like to do those unless they are pretty certain of a clot. So in my opinion, ultrasound is awesome! It's what they use me on for followup checkup. My only suggestion there is be sure they test your arm in different positions. Actually having the clot wasn't that scary; I had great treatment in the hospital and almost painless except that the arms get sore and prickly eventually from all the blood draws and IVs. It was actually scarier to read my medical records after it was over than to experience first-hand!
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Originally Posted by Rini
Wow, well i'm glad they found it. That seems to be a scary scary thing. I don't have much arm problems, but i have poor circulation overall. I've had cold hands and feet since i was 15 so it's so hard to tell if something is wrong. I had hardly any pain when i sleep (if i'm in a good position) from resting my head. Once I get up in the morning i get a throbbing headache. I'm anxious not knowing what's going on in there. Once the ultrasound is done i guess i can relax, haha. Have you had surgery on it? What are your plans to get better? Hope it all goes wonderfly for you, and I'm here for advice as well, though it may be minimal. Thank you for your input 
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