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Old 02-28-2013, 01:53 PM
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seishin seishin is offline
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Join Date: Nov 2012
Location: Austin, TX - USA
Posts: 94
10 yr Member
seishin seishin is offline
Junior Member
seishin's Avatar
 
Join Date: Nov 2012
Location: Austin, TX - USA
Posts: 94
10 yr Member
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Hi Crmak, welcome to the site!

My diagnostic limbo is the same. Originally, a neurologist said I have MG, and I respond to Mestinon and the Tensilon test which reinforced that thought, but I've tested negative on all the receptor antibody tests and SFEMG, so the diagnosis is still pending. Regardless, I'll still address your question.

Yes, I also have throat issues as you describe. When it started in November, I described it as the wall of my throat collapsing in on itself. It was most notable when sleeping on my back but gradually became noticeable when sleeping on my side and now occurs sitting up. It's continued non-stop since November and varies in intensity. Usually I describe it as a 'throat-closing' sensation. At its worst, I felt as if I were actively being strangled with a tight sensation all around my throat accompanied by my blood pressure and heart rate being driven up. The strangulation sensation was worse when lying down. My throat will also pop when I swallow. I can hear the pop and it can be felt by holding a hand to the front of my throat. There's a lot of mucus that collects at the back of my throat, and grains of food will sometimes get stuck there. Round the clock, my throat is tight and occasionally feels achy. I've also had a hoarse voice and other voice changes such as having a high voice like Minnie Mouse (not so common but I have spoken with one other person who has a soprano voice from myasthenic syndrome).

I've spoken with others, there appear to be many people who have a similar throat-closing sensation from MG. I'll be curious to see their responses.

Again, welcome to the board. There are some really amazing people here who you'll come to appreciate.
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