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Old 02-28-2013, 06:15 PM
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
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Hi ABBY,,

I did chuckle reading that!

No I didnt have a lot of sprains to be honest one or two. My main complaint from 0-13 was growing pains awful awful growing pains in my knees hips and ankles.

At age 2 and a half I had an intussception (intestine telescopes back on its self and then blocks) and I had a horrendous scar its spread really wide and was always a livid purple colour.

I had a mouthful of fillings as I have typical EDS teeth and local aneathetics dont work on me they run out too quickly so until my diagnosis the dentist was a nightmare.

I have the feet pseudo tumours and they are getting worse.

From the age of 16 onwards I starting slipping discs at the drop of a hat. I was also diagnosed with scoliosis.

Ive always had low blood pressure and had a few faints. Over the years this gradually got worse. Till 2008 when I could no longer work.

Ive dislocated my knees, hips, shoulders, fingers, toes and have to be very very careful.

Is your son dyspraxic? clumsy? EDSers (as we call ourselves) have problems knowing where our body is in space and time so I regularly fall over the coffee table end of the bed and I swear the door frames have it in for me lol!

Discalcula and dyslexia are also closely linked with EDS.

Sorry for the spelling but its 1115pm in the UK! and Im starting to get tired. Please feel free to ask anything else you can think of. Its the least I can do after everything this forum has done for me.

Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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