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Old 03-01-2013, 02:43 AM
shezbut shezbut is offline
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Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
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My perspective may or may not be one that you're looking for but here it is:

My bf has a similar problem as yourself. He fractured his neck around age 23 and has been quad for 20 years now. He pushes himself hard to remain as independent as possible, and he's pretty darn sexy in my humble opinion! We happened to meet in an apartment building that we both live in, built for disabled people. My disability is brain related. Long-term effects of untreated epilepsy, followed by brain surgery and traumatic brain injury.

I believe that our physical challenges make us more open and understanding towards one another. My bf does have "accidents" occasionally, which are very humiliating moments for him that he absolutely abhors! I never make fun of him, or get grossed out. But, I also used to be a CNA, maybe that's part of my tolerance?? Thankfully, my bf has been very understanding and tolerant of my poor memory and difficulty in decision-making, among other troubles. It has been a lot of give and take on both sides for us.
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Shez

In March 2006, I had a partial left temporal lobectomy to remove my seizure focus. It worked well to control complex partial seizures, but left me hyper-sensitive to light and sound. Migraine headaches increased in severity as well as frequency.

In March 2007, I slipped on the ice and fell upon the left side of my head. The effects were mild TBI, a moderate concussion. The TBI effects increased light and sound sensitivity further, as well as migraine headaches. Seizure disorder got shaken up, requiring new medications to control complex partial seizures.

The long-term effects of these brain issues are very poor short-term memory; difficulty regulating emotions; major depression; anxiety; easily overwhelmed; word-finding difficulty as well as mixing up my words (but not recognizing my mistakes) and an extremely difficult time with decision-making. I also got divorced and am the secondary co-parent of our two daughters. That was a huge blow to me!
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